About Us Patient Power Patient Power
About Us. Patient Power was founded by two health communications pioneers, Andrew and Esther Schorr, who have been in the patient education field for over thirty-five years. Patient Power is devoted to providing patients and care partners dealing with cancer and other serious and chronic conditions with timely, credible and detailed information
Actived: 5 days ago
The Importance of Health Literacy for Patient Empowerment
For David Somekh, Director at European Health Futures Forum (EHFF), there is a great need for health education among citizens and patients.David also highlights that healthcare professionals need to accept that patients are more empowered and want to participate in the decision-making process about their health.
Remedy Health Media Acquires Patient Power®
Remedy Health Media (Remedy) is a leading digital platform that serves communities of patients, care partners and healthcare professionals through a family of trusted health brands that exist to remove barriers to better health. Remedy Health Media owns and operates HealthCentral,
Patient Power's Declaration for Cancer Health Justice
Carlsbad, CA, July 15, 2020-- Patient Power®, a patient-driven cancer news organization, declares its commitment to cancer healthcare justice: empowering patients to the right cancer treatment at the right time for each, irrespective of race, religion, gender, gender identification, sexual orientation, financial means or any other discriminating factor.
Multiple Myeloma Patient Power
One of the issues most likely to become serious quickly is the health of your kidneys, as higher amounts of myeloma protein can eventually lead to renal damage and even total kidney failure. Multiple Myeloma Survival. While multiple myeloma is not curable, it is treatable.
Does T-Cell Health Affect Treatment Outcomes
Yeah, this was actually recently published by our colleague, Dr. Al Garfall regarding T-cell health. And he was able to show that patients with newly diagnosed myeloma, if you look at their T cells, are healthier than those with relapsed myeloma. And with the ones that are relapsed, the patients with healthier T cells have better outcomes, for
Opportunities for Telehealth Amid Coronavirus Patient …
Opportunities for Telehealth Amid Coronavirus. Published on March 31, 2020. Stay home, if you can. More patients are hearing this message from doctors who they might normally see in-person. The novel coronavirus, COVID-19, pandemic is sweeping across the globe at such a pace that patients recovering from recent surgeries, or undergoing cancer
Coronavirus and MPN Internet Myths Patient Power
So the anemia itself, unless it's very severe, I don't think is an independent measure, but it depends a little bit on the other aspects of your health whether or not that is important, for instance, cardiovascular disease, lung disease independently. It may be an exacerbating factor. Andrew Schorr:
Andy Wood Patient Power
Andy, 56 years old, was diagnosed with CLL after a routine physical revealed his blood work was elevated. Andy, who also has multiple sclerosis, was referred to Dr. John Burke at Rocky Mountain Cancer Centers. After being in watch-and-wait for several months, Andy begin to experience CLL symptoms, including a rise in white blood cell count and
Important Information for Newly Diagnosed CLL Patients
It certainly depends on the person. And so if you're somebody who's not used to doing activity or exercising than the best thing to do is to get out and start walking, ideally walking 10,000 steps a day, if possible, but on average, most patients, most …
Multiple Myeloma Patient Story: Finding Hope After
It assuaged my health team’s immediate fears. Now it was time to find my wind. I eased my way back into the sport in January 2016. Less than two years later, I was conquering one of the most imposing physical challenges of my life, and multiple myeloma wasn’t stopping me. It slowed me down, but it gave me a new appreciation for living and
Larry Anderson, Jr., MD, PhD Patient Power
His research has been funded by the American Cancer Society, National Institutes of Health, American Society of Clinical Oncology, and the Multiple Myeloma Research Foundation. Dr. Anderson is a member of the American Society of Hematology and the Texas Medical Association, and he is a diplomate of both the American Board of Internal Medicine
Robyn M. Scherber, MD, MPH Patient Power
Dr. Robyn Scherber is a hematologist at UT Health San Antonio MD Anderson Cancer Center. She received her MD from Rosalind Franklin University of Medicine & Science, completed her internship and residency at Mayo Clinic Scottsdale and a fellowship at Oregon Health & Science University.
MPN Treatment Advances on the Horizon Patient Power
In this Answers Now program, host and MPN patient advocate Ruth Fein is joined by renowned MPN expert Eunice Wang, MD, of the Roswell Park Comprehensive Cancer Center, to discuss new treatment combinations and how they work, advances in symptom control for patients, and the exciting treatments that are on the horizon.
Our Mission Patient Power
Our Mission. Patient Power® is devoted to supporting cancer patients, care partners and other loved ones through education and advocacy - to get the right treatment at the right time working with the right healthcare team. Patient Power offers an ever-expanding library of online programs, organized by health …
Should Everyone With Cancer Get the COVID-19 Vaccine
Many people with cancer are older and have other health problems that would put them at even higher risk if they were to get a COVID-19 infection. Dr. Shoham also pointed out that even a mild case of COVID-19 infection could potentially delay vital cancer treatments. Vaccination Timing and Cancer Treatment
Why Is My Vision Worsening
Dr. van Rhee: Yeah, daratumumab usually does not cause any vision problems— dexamethasone (Decadron) can. First of all, dexamethasone can cause some fluid retention, Secondly, prolonged exposure to dexamethasone can cause cataracts. Obviously, dexamethasone is a potent anti-myeloma drug, and part of many treatment regimens.
Advice for Living With Chronic Lymphocytic Leukemia
Experts Share Advice for Living With CLL. In this Evening with the Docs video replay, a chronic lymphocytic leukemia (CLL) survivor and two experts have an in-depth discussion about living with CLL and what to expect at different points along the patient journey.. Patient Power co-founder, CLL survivor, and patient advocate Andrew Schorr talks to Julie Vose, MD, MBA, Medical Hematologist
The Future of CLL Combination Therapies Patient Power
They discuss the future of CLL combination therapies, what is the horizon, and if they could become first-line therapies soon. Support for this series has been provided by AbbVie, Inc. and Genentech, Inc. Patient power maintains complete editorial control and is solely responsible for program content. Download Transcript.
Managing Your Multiple Myeloma Patient Power
Managing Your Myeloma from Communication to Clinical Trials. In this segment, host Yolanda Brunson-Sarrabo, CPT-NASM, has an in-depth discussion about managing multiple myeloma with Jens Hillengass, MD, PhD, Professor of Oncology and Internal Medicine and Chief of Myeloma at Roswell Park Comprehensive Cancer Center, and Tessa Flores, MD, Assistant Professor of Oncology and Medical …
Coronavirus and Cancer: Frequently Asked
In general, however, health experts do recommend that people with cancer get the COVID-19 vaccine. On January 22, 2021, the National Comprehensive Cancer Network (NCCN) published new guidelines recommending that patients with cancer, as well as their caregivers and household members/close contacts, be immunized when possible.
What Is Inflammatory Breast Cancer
Key Takeaways. IBC can appear overnight. Multiple skin punch biopsies are needed to diagnose or rule out IBC. IBC treatment is trimodal —meaning it has three modes. Inflammatory breast cancer (IBC) is a not a death sentence, but it’s also not a typical breast cancer diagnosis.
What People Are Talking About in the MPN Community
In this segment, Patient Power co-founder and myelofibrosis patient Andrew Schorr sits down with patient advocate David Denny and MPN expert Raajit Rampal, MD, PhD, of Memorial Sloan Kettering Cancer Center, to discuss hot topics in the MPN community. They will also clarify information on new treatments and share hopeful messages about where
Share Your Cancer Story Patient Power
Share Your Cancer Story. Are you a cancer patient, survivor, or care partner? Here at Patient Power, we offer resources from experts - clinicians, researchers, and YOU to provide hope and inspiration to others who are going through cancer. Please fill out the form below and tell us in 250 words or less how cancer has impacted your life.
COVID-19 and Cancer Patient Power
COVID-19 and Cancer. This is a multipart series exploring important questions about COVID-19 and its unique impact on people with cancer. In this series, Patient Power consulted medical experts to get reliable information about COVID-19 and how it affects cancer patients, as well as cancer research, treatment, screening, and prevention.
Find a Clinical Trial Patient Power
Welcome to our Clinical Trial Finder tool. Patient Power has partnered with Antidote to provide you with an easy-to-use tool to assist in your search for clinical trial information. Give the tool a try and if you have any questions, please contact [email protected] Get e-Newsletters with the most current information about your health condition
Bladder Cancer Stages and Grades Explained Patient Power
What Are the Stages and Grades of Bladder Cancer? It is important to have a thorough understanding of your bladder cancer diagnosis, which includes the grade and stage of the cancer. Follow along as Dr. Stephen Riggs, MD, Associate Professor in the Division of Urology at Levine Cancer Institute, explains the different stages and grades used to assess bladder cancer and how this …
Why Is My Hemoglobin Level Dropping
No matter how quickly the marrow tries to keep up with the demand, those proteins kill off many more cells, causing a hemolytic anemia. The Velcade and prednisone attack those cells, both killing the cells or rendering them unable to make the protein in question. Rituximab is an agent that attacks a structure on the cell membrane called CD20.
FDA approves belantamab mafodotin for Mutliple Myeloma
FDA Has Approved belantamab mafodotin for Treating Myeloma. Dr. Joshua Richter from Tisch Cancer institute at Mount Sinai Medical Center and Patient Power Co-Founder Andrew Schorr discuss the approval of Blenrep (belantamab mafodatin) a brand new drug and brand new target for multiple myeloma patients. Instead of just attacking a cancer cell, Blenrep works to deliver a toxic …
Mantle Cell Lymphoma: Why Did I Get a Deadly Lymphoma
Thirty minutes after I’d entered my doctor’s office, she showed me an X-ray. My torso was covered with bright spots resembling glistening hailstones scattered on a sidewalk after a storm. I had mantle cell lymphoma (MCL), which is considered incurable. At diagnosis, I was stage IV and my bone marrow was a cancerous mush.
Prostate Cancer Patient Power
If you have questions or concerns about your health, please consult a healthcare professional. Prostate Cancer Causes. While the exact cause of prostate cancer is not yet fully understood, scientists have discovered a number of connections between both inherited and acquired genetic mutations and increased rates of prostate cancer.
Farrukh Awan, MD Patient Power
Oncologist and Hematologist, Harold C. Simmons Comprehensive Cancer Center, UT Southwestern Medical Center. Dr. Farrukh Awan, is an oncologist in in Dallas, Texas. He specializes in bone marrow transplantation and treatments for leukemia and lymphoma. Dr. Awan earned his medical degree at the Aga Khan University Medical College in Pakistan.
Black Women and Breast Cancer Patient Power
Black women have a 39% higher recurrence rate than white women. Black women under 35 get breast cancer at twice the rate, die at three times the rate. Black women are 2.3 times more likely to get triple-negative breast cancer, which has not very many treatment options until yesterday, till recently. Which is really great news.
Should CLL Patients Get a Flu Shot
It caused 18 million visits to a health care provider, 400,000 hospitalizations and 22,000 deaths, according to the CDC. 2 This flu season, doctors are concerned about the double whammy of COVID-19 and the flu. Infections in People with Cancer
No-Shave November for Prostate Cancer Awareness Patient
The History of Movember. What began as a gimmick to bring back the handlebar, the pencil, and the walrus mustache, has become an international health awareness campaign for prostate cancer and other causes.. Over beers one day in Melbourne, Australia, two friends — Travis Garone and Luke Slattery — talked about raising funds for men’s health issues like prostate cancer, similar to
Second Generation BTK Inhibitors for CLL Patient Power
Dr. Barrientos: My name is Jacqueline Barrientos. I work at the CLL Research and Treatment Program in Long Island, New York. It's part of the Northwell Health system. So as you all may be aware, ibrutinib (Imbruvica) was a first-in-class oral BTK inhibitor, Bruton's tyrosine kinase inhibitor, that changed the way that we treat our patients with CLL, both in frontline and in relapsed/refractory
Julie Lanford, MPH, RD, CSO, LDN Patient Power
Julie Lanford is the Wellness Director for Cancer Services, a non-profit in Winston-Salem, North Carolina.She is a registered dietitian, licensed nutritionist and a board-certified specialist in oncology. Julie developed www.CancerDietitian.com a healthy living website for Cancer Services that translates evidence-based nutrition guidelines into consumer-friendly messages for everyday life.
Michele Nadeem-Baker Patient Power
Michele's advocacy efforts were recognized when she was nominated as a WEGO Health Awards Patient Leader Finalist. Michele is on a Phase II clinical trial and in remission. She is an FDA Patient Representative, spokesperson for a world leading cancer institute, a Regan-Udall Foundation certified Big Data For Patients Advocate, a HealtheVoices
Why Do Elevated Levels for MCH, MCHC, MCV and MPV Mean
But, early in the process, red cells start to become less perfect and those very small changes can be tracked by alterations in the MCV and MCHC and RDW. Indeed, the earliest sign of some difficulty with the development of red cells is an increasing RDW, and this can be seen months in advance of the actual anemia.
Angela Fleischman, MD, PhD Patient Power
Dr. Angela Fleischman is Assistant Professor in the Department of Medicine, Division of Hematology/Oncology at UC Irvine Health in Irvine, California. She is dedicated to a lifelong career as a clinician-scientist investigating hematologic malignancies, integrating her research with the clinical care of patients with this disease. In July 2013
Lung Cancer Patient Power
Lung cancer is a type of cancer that begins in the lungs. It is most frequently diagnosed in people who smoke or have a history of smoking, but non-smokers can develop lung cancer too. Risk factors include smoking, exposure to secondhand smoke, exposure to certain toxins and having a …